Epilepsy Stories

Susan’s Story – The Evolution of Neurology and Neuro-Testing from 1964 – 2018

My first EEG, in Boston ca.1966 — showed “clear”. My first MRI, in The Hague ca.1976 — showed “nothing significant”. All my EEG’s showed clear until my late 30’s. Even in 2015, when I was having seizures once a week, I reported at the Emergency Room with severe neurological symptoms (extreme trembling, intermittent vision loss,

December 14th, 2018|

The Iraqi heat made me epileptic: Kenyan who worked in Basra narrates

I was not born epileptic. I got my first seizures in 2011 while in Basra, an oil port in southern Iraq. I was working in Basra as a baker. Initially, I did not take the seizures seriously. I ignored them for three months, thinking they would just go away. My roommate, a Ugandan, told me,

December 7th, 2018|

Adel Bounif – a French poet raising epilepsy awareness

My name is Adel Bounif. I am 38 years old and live in the North East of France. I have a Master’s degree in Foreign Languages. I work in Luxembourg and am married. I have a daughter called Manel. She is 6 years old. She is suffering from Dravet syndrome. It is a rare genetic

November 30th, 2018|

‘Nina, the Little Bulldozer’

A caring short film on Epilepsy Nina, The Little Bulldozer is a short film that is part documentary, part animation. Through the words of Nadia and Thomas Davies (Nina's parents) the little girl comes to life and symbolizes the spirit of overcoming. This unique short film was created by a world class group of extremely

September 24th, 2018|

Angeyo’s story of living with epilepsy in Gulu, Uganda

It started when I was between 12 and 14 years old and I was shouting during the night. When my family came to check on me, they found me unconscious and stiff with foam around my mouth. My mother thought it was malaria and took me to the hospital for a check-up but everything was

February 26th, 2018|

Torie shares her story for #EpilepsyDay

12th February is International Epilepsy Day. What does that mean you might ask? Well, to me it’s a clear opportunity for all those affected by – and indeed so far not affected by – epilepsy; to learn about the condition. To chat and educate regarding overactive brains!  So many people, including many of those already

February 12th, 2018|

‘Always live each day bright and happy’ – Jenifer’s Story

Always live each day bright and happy. My name is Jenifer Ann and I live in Perth, Western Australia. I was diagnosed with epilepsy when I was ten years old, my family had no understanding of what epilepsy was and I had no idea what was happening to my body. I have always had a

January 21st, 2018|

People see my bright side but never the dark side

Life is beautiful with my epilepsy- every night and every new day after: severe and bright and happy and hilarious! People see my bright side but never the dark side- the impact of not sleeping, the work of washing bedclothes, of not having a fresh brain in the morning. The silence of epilepsy and the

January 19th, 2018|