Epilepsy Stories

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Angeyo’s story of living with epilepsy in Gulu, Uganda

It started when I was between 12 and 14 years old and I was shouting during the night. When my family came to check on me, they found me unconscious and stiff with foam around my mouth. My mother thought it was malaria and took me to the hospital for a check-up but everything was

February 26th, 2018|

Torie shares her story for #EpilepsyDay

12th February is International Epilepsy Day. What does that mean you might ask? Well, to me it’s a clear opportunity for all those affected by – and indeed so far not affected by – epilepsy; to learn about the condition. To chat and educate regarding overactive brains!  So many people, including many of those already

February 12th, 2018|

‘Always live each day bright and happy’ – Jenifer’s Story

Always live each day bright and happy. My name is Jenifer Ann and I live in Perth, Western Australia. I was diagnosed with epilepsy when I was ten years old, my family had no understanding of what epilepsy was and I had no idea what was happening to my body. I have always had a

January 21st, 2018|

People see my bright side but never the dark side

Life is beautiful with my epilepsy- every night and every new day after: severe and bright and happy and hilarious! People see my bright side but never the dark side- the impact of not sleeping, the work of washing bedclothes, of not having a fresh brain in the morning. The silence of epilepsy and the

January 19th, 2018|

Ryan’s story

In May of 2016, our son Ryan, had his very first seizure. We were driving at the time to visit his Grandpa’s graveside because it was my birthday and this was a family tradition. We pulled up in the midst of a busy 4 lane road and flagged down help the minute we saw him

January 8th, 2018|

Logan’s Story

Logan is 11 and truly a “super hero” for facing the challenges that epilepsy and autism has brought him! He has a VNS, had 2 laser ablation brain surgeries and is diagnosed with intractable epilepsy and autism. Even though his parents constantly worry and see the hard times he goes through of being in and

January 2nd, 2018|

Lara’s Story

Lara began life as a beautiful, happy child, reaching all of her milestones very early. Her eyes were bright and she would light up a room with her presence. There was something special about her. Lara experienced her first seizure at the age of two, at the beginning of our first family holiday. Exhausted from

January 2nd, 2018|

Chloé Grayson’s story – My Mother’s Epilepsy

My mother’s epilepsy went undetected for 24 years. It wasn’t until she had a violent seizure in front of other people that it was officially confirmed. Upon reflection, she realised that it explained a lot of things that she had been experiencing throughout her whole life. The first time it was suspected by a medical

December 8th, 2017|