In May of 2016, our son Ryan, had his very first seizure. We were driving at the time to visit his Grandpa’s graveside because it was my birthday and this was a family tradition. We pulled up in the midst of a busy 4 lane road and flagged down help the minute we saw him
Logan is 11 and truly a “super hero” for facing the challenges that epilepsy and autism has brought him! He has a VNS, had 2 laser ablation brain surgeries and is diagnosed with intractable epilepsy and autism. Even though his parents constantly worry and see the hard times he goes through of being in and
Lara began life as a beautiful, happy child, reaching all of her milestones very early. Her eyes were bright and she would light up a room with her presence. There was something special about her. Lara experienced her first seizure at the age of two, at the beginning of our first family holiday. Exhausted from
My mother’s epilepsy went undetected for 24 years. It wasn’t until she had a violent seizure in front of other people that it was officially confirmed. Upon reflection, she realised that it explained a lot of things that she had been experiencing throughout her whole life. The first time it was suspected by a medical
Juha Karjula, a 38 year-old kindergarten teacher, obtained his university Master’s degree despite having refractory epilepsy. He had a tonic-clonic seizure when he was a high school student. The diagnosis was given quite soon after the seizure, however the cause of his epilepsy is still unknown. The first antiepileptic drug did not stop his seizures,
Sasha Pina lives in Las Vegas, Nevada USA and is 22 years old. Sasha was diagnosed with Epilepsy in 2011 a year after a traumatic brain injury. She was diagnosed with complex partial, simple partial, and nocturnal seizures and also has auras before her seizures. She will sometimes only have auras with no seizure afterwards.
Videos from the remarkABLE project, Twenty 20s, supported by the International Bureau for Epilepsy through the Promising Strategies initiative.
