Lack of knowledge can also contribute to challenges in access to treatment due to misdiagnosis, inappropriate treatment decisions, inadequate provision of care and insufficient support for people with epilepsy and those who care for them. In fact, due to the stigma surrounding epilepsy, in many parts of the world, those affected will not come forward to seek care.
Additionally, lack of knowledge also hampers prioritisation of, and resource allocation, to epilepsy by our policy and decision-makers, and acknowledgment of the need for specific policies and programmes to address the burden of epilepsy.
Therefore, this International Epilepsy Day, we want to improve knowledge levels about epilepsy amongst all sectors of society by asking people with epilepsy and those who care for them to share their Epilepsy Journey.
By empowering and amplifying the voices of people with epilepsy, and those who care for them, together we can increase knowledge and understanding.
Join the conversation by sharing your journey with us, or explore the journeys of others to better understand the real impact of epilepsy and to increase knowledge on how, together, we can ensure IGAP’s ten-year roadmap can be used to help us navigate, together, the obstacles encountered on these journeys!