Epilepsy Stories

Home/Epilepsy Stories

‘Shine of Light’ – Jad’s Epilepsy Story

My parents told me that my birth on May 12, 2009 was difficult, and they called me Jad (an Arabic name meaning "generous" or "kind-hearted") because I was their best gift after marriage. They told me that I had a shock in my head in my first year childhood. When I was 18 months my

March 26th, 2019|

A story about a young woman, who has a secret

Once upon a time, there was a young woman who fell in love… They met in tango class. The girl was an university student, and the man was a doctor. They had long conversations. They imagined their future together. They wanted to have kids; one boy and one girl. But the woman had a very

March 13th, 2019|

Susan’s Story – The Evolution of Neurology and Neuro-Testing from 1964 – 2018

My first EEG, in Boston ca.1966 — showed “clear”. My first MRI, in The Hague ca.1976 — showed “nothing significant”. All my EEG’s showed clear until my late 30’s. Even in 2015, when I was having seizures once a week, I reported at the Emergency Room with severe neurological symptoms (extreme trembling, intermittent vision loss,

December 14th, 2018|

The Iraqi heat made me epileptic: Kenyan who worked in Basra narrates

I was not born epileptic. I got my first seizures in 2011 while in Basra, an oil port in southern Iraq. I was working in Basra as a baker. Initially, I did not take the seizures seriously. I ignored them for three months, thinking they would just go away. My roommate, a Ugandan, told me,

December 7th, 2018|

Adel Bounif – a French poet raising epilepsy awareness

My name is Adel Bounif. I am 38 years old and live in the North East of France. I have a Master’s degree in Foreign Languages. I work in Luxembourg and am married. I have a daughter called Manel. She is 6 years old. She is suffering from Dravet syndrome. It is a rare genetic

November 30th, 2018|

‘Nina, the Little Bulldozer’

A caring short film on Epilepsy Nina, The Little Bulldozer is a short film that is part documentary, part animation. Through the words of Nadia and Thomas Davies (Nina's parents) the little girl comes to life and symbolizes the spirit of overcoming. This unique short film was created by a world class group of extremely

September 24th, 2018|

Angeyo’s story of living with epilepsy in Gulu, Uganda

It started when I was between 12 and 14 years old and I was shouting during the night. When my family came to check on me, they found me unconscious and stiff with foam around my mouth. My mother thought it was malaria and took me to the hospital for a check-up but everything was

February 26th, 2018|

Torie shares her story for #EpilepsyDay

12th February is International Epilepsy Day. What does that mean you might ask? Well, to me it’s a clear opportunity for all those affected by – and indeed so far not affected by – epilepsy; to learn about the condition. To chat and educate regarding overactive brains!  So many people, including many of those already

February 12th, 2018|